10.13.17 Dora and the Explorers – Some Things I Learned about Dementia reposted from November 2014 with updated information

October 14, 2017 – My interest in Dementia has changed over time since I originally published the information that begins below.  My own dementia was not nearly as bad back then as it is now.  I use to be able to talk to people and they could not tell that I had dementia.  Now they can.  I am reblogging these posts that were originally published on my dementia blog at rosalynsalzheimersblog.wordpress.com.  I am reposting and republishing them on that blog and publishing them here as well.

I ask that our followers who personally know me and see me in person to read these carefully as a means for you to help Roy and I as we go down this Dementia Journey.  I plan to add personal information when it applies to me here on this blog.  I have an appointment with a new neurologist, Dr. Patricia Morgan on November 9th to review the past and get some fresh updated information on the condition of my brain now.

The three dementia medicines I’ve used over the last five years are now making me very dizzy and I’ve been taken off of them.  I’ve tried a couple of times to get back on them but after several days of it absorbing in my system all three made me so dizzy its far worse than the benefit I was getting from having a clearer brain.  I am not currently on anything and I won’t get back on anything until seeing the new neurologist.

Here’s the first blog post I wrote about Alzheimer’s Dementia around three years ago.

 

10367601_541945785942421_1370303081116848230_n Where do I start when sharing about Alzheimer’s? When I speak of Alzheimer’s here, it may also pertain to one of the other forms of dementia. Alzheimer’s is the most common form of dementia. Here is a link to the different forms of dementia so you can learn a bit more about them.

My mama, Josie Mae Cochran Blum Traylor died at age 87. On her death certificate a contributing cause of death was dementia. I plan to write more in future posts about her and our family’s experience as she suffered and died. I hope that what I will share will be helpful to those early on in this experience. I will share how life was for us while she lived with us and how I came to love that beautiful little Christian lady more every day until she left us on December 18, 2007.

I am by far NO expert on dementia. I can just share with you my own experience, and what I have learned online bringing it all into one place to help you. It’s important that you understand that if what I share about my experience is different than what your loved one’s doctor tells you: Listen to the Doctor.

My inspiration for writing this was all the things I learned AFTER my mother passed away that I deeply wish I knew when she was still with us enduring this horrible disease. When we first started noticing that something was not right, I searched for any information I could find, which back then wasn’t much. I found the most helpful information came from personal blog posts of real life experiences by caretakers of their family member or friend who had dementia.

I hope to become a resource like that to share what we learned during her life, and since then, about Alzheimer’s. I’ve invited friends and family to contribute since my experience is with my mother and others experiences were with their father, sister, brother, grandfather, grandmother, etc. We all experienced things from different perspectives.

While I’m writing this to help the caregiver understand more, you might not be the caregiver. Instead you’re a grandchild, child, other family member, friend or church family. 10689816_537425689727764_867424369629248004_nSome of what I have to share is for everyone who has anyone in their life with Alzheimer’s.

The individual who says “Why even go visit, they won’t know I was there as soon as I walk out the door”. I urge you to read and learn what you really CAN do.

I collected videos, stories, songs, graphics, blog posts and more that I will shared each week. These are not only about the person with Alzheimer’s but things that will help the caregiver survive the overwhelming struggles you will face. I’ve been the caregiver and learned a lot that helped me cope. I want to share that with you

These blog posts will come out weekly, probably on Fridays. The next post will have a general VERY IMPORTANT point I’d like to start with. It is the main thing that I’ve wanted to share for so long that may sound simple, but will make such a difference in a person life who is living with dementia. Someone, probably either God or my mama, have laid on my heart that others can be helped by the experience we had and I hope that turns out to be the case.

Please come back next time when I’ll share the number one thing you can do for your loved one from the very beginning of dementia. If you want to get an email whenever I post a blog (I write about other things, not just Alzheimer’s) find the “FOLLOW” box which is usually to the right hand side somewhere, enter your email and respond when the confirmation email is sent to you.

If you are in need of prayer for yourself, in your role as a caregiver, or if you have any specific questions please send me a comment with whatever information you want to share or ask about. I’ll say again that I’m not expert but I probably experienced with my mom a lot of things you’re going through and will try my best to help. If I don’t know the answer I will tell you I don’t know. I’ll never judge, I’ve been judged enough to last a life time and would never do that to someone else. My email address is rosalyn@selu.edu if that is an easier way to communicate.

I’ll close with a video I just found that gives a short summary of what Alzheimer’s disease is, how it progresses and why awareness is so important. The medical terms may go right over your head. Some went right over my head and I majored in Psychology. I think the video itself is extremely helpful in seeing how their brains are changing forever throughout this process.

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Click on the links below to go there!

Dora and the Explorers published randomly

Wacky Wonderful Wednesdays published randomly

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